elderly · family · Life

Misunderstood

Sally3 Comments

scn_0001-2I found a little notebook that my mother probably kept in her purse in the mid-to-late-1980s. The notes inside cover a huge span of topics:

Sermon notes?
Sermon notes?
Golf rules
Golf rules
Recipes
Recipes
Other miscellaneous notes
Other miscellaneous notes

She even wrote a cheat sheet for my husband’s siblings. He has eight brothers and four sisters, so she wrote out their names and little reminders to help her keep them straight. I should have been so smart.

One note bothered me – partly because I couldn’t figure it out what she was trying to say, and partly because I have anxiety about doing things right for my father.

don’t do anything
you don’t tell them
Not recipes
Not checkbook

Helping elderly parents involves walking a fine line. On the one hand, I have a tremendous amount of respect, appreciation, and love for them, but on the other I sometimes need to take the reins.

The other day I took my father to get his haircut. When he was done, he fished his wallet out of his back pocket. He rifled through it with his fingers, pausing on a five dollar bill before looking at me questioningly.

“What do I need here?” he asked, and he pushed the wallet into my hands.

I handed the woman a twenty — the haircut cost $10 — and she gave back a five and five ones. I handed these to my father. “You need to decide how much you want to tip her,” I said.

It was awkward. She picked up the broom to start sweeping. He fanned out the money in his hand and fiddled around with the bills.

“What are you doing to me?” he said. Clearly he couldn’t think through the next step.

I felt terrible. I took some of the ones and handed them to the stylist.

But I wasn’t doing anything to him. I was trying to allow him some autonomy.

At home I’ve started paying some of his bills without discussing them with him. The bills are confusing for him, but cutting him out of the process feels wrong to me too.

don’t do anything
you don’t tell them
Not recipes
Not checkbook

The words in the notebook stung. I’m trying so hard to do right by him.

I have a futile hope that someday he’ll be able to do it all again. Will he understand why I took over?

I pulled out Mom’s notebook again and studied the rest of what was written on that page.

Screens –
monochrome – 1 color
get 80 columns
c/ monochrome monitor
not c/ T.V.
Color – expensive…

The next page had more computer-buying advice. Were these notes from an introductory computer seminar?

first
Buy Software ^ you
need — then Hardware
to go with it

Seriously?

But maybe those first lines, “don’t do anything you don’t tell them” refer to computers, and the fact that they are just machines.

But then, why “not recipes”?

Why “not checkbook”?

I’ll probably never know.

Alzheimer's · Faith · family · poetry

The Weight of Struggles

Sally2 Comments

In 2011, my mind was spinning with all the information being thrown at me.  Bladder cancer.  Catheter care.  Chemotherapy.

That summer, my mother had been diagnosed with bladder cancer.

As if Alzheimer’s wasn’t enough.  As if a second bout with breast cancer wasn’t enough.  As if my father needing a pacemaker wasn’t enough.

In the midst of all this, I wrote a poem based on Milo of Croton, the legendary Greek wrestler who began each day lifting a calf.

Okay -- not lifting a calf here.
Okay — not lifting a calf here.

The legend goes that by lifting the same calf every morning, Milo could eventually lift a full-grown cow or bull. I didn’t need to lift a physical cow, rather a heavy load of struggles, one that was increasing in size.

If I lift the same calf every day
Could I someday lift a cow?
It seems logical and sensible
But impossible somehow.

Somehow I become broken
And it’s more than I can take.
Will I see failure coming?
Or do I need to break?

Or do I need a break
From lifting up the cow?
Am I stronger then, or weaker,
When I start to bow?

To bow under the pressure that’s
So heavy on my soul
That the spirit and mind and body
All begin to show the toll;

When can I say “Uncle”
And deal with this no more?
I strain under the calf-turned-cow
My cheek pressed to the floor,

Trying to lift up the cow,
But the Lifter of my head
Says, “Let Me help. Stop a while.
I’ll put others in your stead.

“Let friends come beside you.
You can take a rest.
Trust Me; it will be okay.
I really know what’s best.”

But the habit formed of lifting,
Lifting, lifting every day
Is scary to give up.
Lord, show me the way.

During that time I felt God answering every prayer I ever prayed about knowing Him more, trusting Him more, and resting in Him more completely.

The funny thing about challenges is that the harder they are, the deeper we grow.

I couldn’t meet the challenges.

At least not alone.

I found myself clinging to my faith during that challenging time.

Faith is not a crutch as some might say.  It is a Strength.

It’s also faithful friends — that hands and feet of Christ.

I wrote Milo of Croton 5 years ago — and I think I still haven’t learned to yield.

But I’m certainly stronger.

Thanks be to God.

family · Leaning In · Life

Trapped

Sally6 Comments

In the spirit of “Leaning In,” I offered to help my father write some letters.

During December I felt trapped, much the way a mother of a toddler feels. I remember being home with small children and wondering what it would be like to be able to do and go without worrying about other people. Now I sometimes feel that way again, but it’s not because of small children.

I had asked Laurel some of the same questions I asked Mary (see Explanation). Laurel knew how old I was. She also astutely answered the what’s-my-favorite-thing-to-do question. “You like alone-time,” she said — and I felt a little lump in my throat because she understood me so well.

Alone time. I crave it. Like chocolate. Or coffee.

When I was home with toddlers, I would retreat to the bathroom — and they would stand outside the door, talking to me, trying to get in, asking when I was coming out.

In December, my father would sometimes stand at the bottom of the stairs. “Sally? Sally? Are you going anywhere today? I’d like to go out,” he would say. And I would feel so selfish that I just wanted to go out alone. All. By. Myself.

With toddlers, sometimes they would follow me everywhere. “Fred” used to sit on my foot and hold onto my leg. I would hobble around, my steps uneven because I was dragging a little boy with me. He simply wanted to be with me.  If I stopped to read with him or play with him, sometimes that would satisfy his Mom-time need, and, in turn, I would have a little alone time. In the kitchen. Woohoo.

Of course, I couldn't find a picture of Jacob hanging on my leg -- they do exist! -- but this him, the youngest at the time, at about the right age.
Of course, I couldn’t find a picture of “Fred” hanging on my leg — they do exist! — but this is him, the youngest at the time, at about the right age.

So — leaning in. I decided in 2017 that I wouldn’t try to escape, but would rather lean in. Embrace.

Instead of escaping upstairs, I asked my father if I could help him write a letter. He had been saying that he wanted to write to a few people, but, beyond the struggle of gathering thoughts into words, he also struggles with the fine motor coordination of writing.

Yesterday, we sat to “write.”

It took him a long time to formulate his thoughts, but his words revealed how trapped he felt, too. He told his friend why he couldn’t travel to visit her —

 … I feel like I should accept the wisdom of the rest of my family that I should not drive a car.  I agreed to this reluctantly, but there’s no way out.

No way out. What a terrible feeling.

He got frustrated with the writing process and we put the letter aside.

So today, we’ll finish that letter and get it in the mail.

And I’ll take him out with me.

It’s a lot slower running errands with a person with a walker.

Not unlike a child hanging on a leg.

 

family

Explanation

Sally4 Comments

“What’s something I say a lot?” I asked Mary.

I was reading another person’s post on Facebook that contained a list of questions parents can ask their children to get funny answers.

I knew I was in trouble when Mary answered, “I’ve suddenly forgotten everything you’ve ever said.”

“Really?” I asked.

“My mind just goes blank sometimes,” she said. “Once in geometry class, the teacher asked me a question and I told that I had just forgotten everything I ever knew about angles. She thought that was pretty funny.”

Mary’s answers revealed that she recognized my penchant for coffee.

      Q: What makes me happy?
      A: Coffee.
      Q: What makes me unhappy?
      A: Lack of coffee.
      Q: What’s my favorite food?
      A: Is coffee considered a food?

And that she understood how important home is to me

      Q: If I could go anywhere in the world, where would it be?
      A: Home

But one answer definitely needed more explanation.

      Q: What’s my favorite thing to do?
      A: Cut pictures out of children’s books

Yes, this is true. But it may not be exactly as it sounds.

I’ve been playing with collage, and using old picture books — the ones with pages falling out, or colored on, or ripped — and cutting out the pictures to use in my collages.

For Christmas, our place holders didn’t have names on them, just pictures that made me think of that person. img_0899To make 20 place-cards required a lot of pictures. Mary watched me spend a lot of time snipping. And she saw me get excited whenever I found a beat-up copy of a favorite book.

Some of my cut-out pictures have made their way onto cards. Quirky cards, at best. The possibilities are infinite when combining children’s books.

A dear friend (and recipient of one of these strange cards) sent me a stamp so I can add my name to the back of the cards and make them official.img_1033

They are made with love.

And often while sipping a cup of coffee.

Mary can attest to that.

Leaning In · Life

Delight

Sally3 Comments
It was a cold day
A cold day in upstate New York

Yesterday was a rush-rush day. I had too many things to do in the available hours.

Around 4:30 PM, I made a quick run into the grocery store. The wind was gusty and frigid as I dashed for the door.

In between the open doors a woman stood calling back over her shoulder, “Come ON!” The exasperation was clear in her voice. She pulled her coat tight around her, flipping up the lapels to block the wind.

As I got closer I could see who she was talking to. A little girl, maybe 4 or 5 years old, was in the estuarial space of warm and cold, the space where shopping carts and bottle return machines exist, between the two sets of automatic doors. She had her back to her mother, her hands over her head, fingers extended and wiggling. She crouched and wiggled her bottom a little before jumping up with excited squeals.

She was watching herself on an overhead monitor that showed all the people entering and exiting the store.

“She thinks she’s on tv,” her mother said to me, and rolled her eyes.

I laughed — delighted by the child’s delight. The girl continued her dance, crouching then jumping, waving her hands and arms, giggling and squealing all the while.

Her mother smiled back at me.

For just a moment the two of us watched together.

Then I went in, grabbed the groceries I needed, and headed for the check-out.

I was still smiling when it was my turn to pay.

I was still smiling when I got home.

Two observations I’d like to make:

  1. Delight is contagious. I’m glad the little girl shared hers with me.
  2. Leaning in and slowing down can be as simple as a momentary pause at the grocery store.

 

 

elderly · Leaning In

At the Post Office

Sally5 Comments
Painting at the Fenimore Art Museum: Village Post Office, 1873. Thomas Waterman Wood
Painting at the Fenimore Art Museum: Village Post Office, 1873. Thomas Waterman Wood

I stood in a very long line at the Post Office yesterday.

Post Office line definitions for a small town:

  • No line = go directly to the counter
  • Brief wait = someone already at the counter
  • Line = someone waiting, someone at the counter
  • Long line = 2 someones waiting, someone at the counter
  • Very long line = more than 2 people waiting in addition to the person at the counter.

Yesterday, when I first got there, a young couple was at the counter mailing several packages. They held whispered consultations with each other about every package. I think the cost was more than they expected. When the clerk announced, “That’ll be $79.50,” they looked at each other briefly before she swiped a card and they were done.

I still had two people ahead of me, but three or four people now stood behind me in this very, very long line.

The elderly woman at the front of the line approached the counter. She placed two packages on it.

“This one is FedEx,” the clerk said. “I can’t take it here, but you can mail this other one.”

“What?” the woman asked.

The clerk spoke slowly as she repeated in a louder voice, “This package goes to FEDEX. You have to take it down to THE COMMONS. But I can help you with THIS PACKAGE.”

I couldn’t hear what the elderly woman said, but I watched the postal clerk’s face soften.

“Let’s look at this one,” the clerk said, holding the FedEx mailer. “I don’t handle these but I think we can figure it out.”

She read aloud the instructions on the FedEx slip.

The man behind me groaned and left.

The woman ahead of me looked at me, shrugged, and followed him with her eyes out the door.

“You need to sign HERE,” the clerk was saying, “before you put it in the DROP BOX.”

The elderly woman said something.

“THE COMMONS,” said the clerk. “You know, THE SHOPPING CENTER SOUTH OF TOWN.”

The woman nodded and asked something.

“THERE’S A DROP BOX. YOU JUST HAVE TO PUT YOUR PACKAGE IN,” the clerk explained.

The door opened and closed several times over the course of this, each time bringing a wintry draft. I could feel the people behind me shuffling their feet and shifting packages between arms.

The clerk was remarkable — so pleasant, so patient, so unperturbed by the growing line. She took care of the package that was being mailed postal service and reminded the woman again where she needed to take her FedEx package, before turning her attention to the next person.

In this year of “Leaning In“, I knew that I needed to be more like the postal clerk. Too often I have been like the man who left, feeling the tick-tick-tick of time slipping away.

I don’t have time for this, I tell myself — but, really, what is so pressing?

Life is too short to rush through it.

Yesterday I learned something from an elderly woman who didn’t understand the difference between FedEx and USPS, and a postal clerk who took the time to help her.

I wonder what I can learn today if I slow down.

 

family

Pursuing Dreams

Sally1 Comment

I remember when Sam learned that he had arthritis.

He had been struggling with shoulder pain and gone for treatment for tendonitis, a common problem for swimmers. He couldn’t lift his arms over his head and the physical therapist commented that he was like an old man.

Fortunately, someone recognized that Sam had a bigger issue than tendonitis — a “more global problem” is how they put it.

After running a bunch of tests, they gave him the life sentence — psoriatic arthritis.

“What am I going to do?” he asked. “I won’t be able to do the things I love.”

By that he meant climbing, paddling, skiing and all sorts of other outdoor activities. Sam was tempted to throw in the towel.

His rheumatologist looked him in the eye and said, “It doesn’t mean that at all.” He encouraged Sam to pursue his dreams.

And Sam did.

That was ten years ago.

The first time we went to British Columbia, I knew Sam would thrive there.self-in-bc

img_0553Honestly, I wasn’t surprised when he wanted to make it his home.

And found a lovely Canadian woman to marry.

When Sam was home at Christmas, he mentioned going to “physio” — that’s Canadian for physical therapy. He works at a canoe and kayak store, and has recently been having trouble lifting boats over his head.

Instead of giving up, he’s working (again) at strengthening those shoulders.

Professional golfer Phil Mickelson is the poster boy for psoriatic arthritis.

I think Sam should be — his story is more inspiring.

To me, anyway.

But I may be biased.

 

Alzheimer's · Book Review · family

The Benefits of Rust

Sally3 Comments

Remember when I said I would be rusty trying to write again? I was feeling that rust this morning as it seized up my writing gears.

Today I wrote a whole post, deleted half of it, wrote a little more, made a meme, considered dropping the whole thing in the trash, and then decided to just stick it in a draft folder. Here’s the meme, though —predictable

Then I looked back to see what else I had written on this day in history.

Five years ago, I had written a book-review-ish post for a fellow blogger, Christine Grote. We had started blogging about the same time and visited each other’s blogs fairly often. Each of us was dealing with Alzheimer’s — me with my mother and her with her father.

We cross paths with so many people, especially in the blogging world. When I visited her blog today, I felt like I was visiting a long-lost friend.

Here’s part of what I published 5 years ago —

Dancing in Heaven — a sister’s memoir is a tender story of growing up with a severely handicapped family member.  Christine’s sister, Annie, was so developmentally handicapped that doctors predicted she wouldn’t live past the age of eight.  Through the love, devotion and tireless care from the whole family, Annie lived to be 51.

Christine weaves into the story the onset of her father’s Alzheimer’s.  That’s what I had been following on her blog.  Before Alzheimer’s, however, she had interviewed her parents about life with Annie.  When she asked her father if he had any regrets, he said,

“The biggest regret I’ve got of the whole thing is that she cannot speak.  Everything else I can deal with pretty much as it comes along.”

As I read that part, I felt a catch in my throat.  His Alzheimer’s has taken away his ability to speak.

Alzheimer’s seems to affect people in very different ways.  Some symptoms are universal — the loss of memory, for example.  But my mother has not lost her ability to verbally communicate.  She can be sharp-tongued and nasty.  She can definitely communicate.

2017 note: My mother did eventually lose the ability to communicate. She rarely spoke near the end, and when she did, it made little sense.

Christine’s father has fallen into a silent world.  He doesn’t speak often.  As I read his quote about regrets in Dancing in Heaven, I remembered one of Christine’s posts about a communication break-through they had experienced using a whiteboard, Resolving a Quandary.  How much more meaningful that post became knowing how precious that ability to communicate was to him!

Thank you, Christine, for your beautiful memoir.  It is sweet, gentle, and encouraging.

In the intervening five years, Christine’s father passed away as has my mother. Today, when I visited her site, I saw that she had completed her book about her father, Where Memories Meet.

I guess rust can sometimes be a good part of the adventure. It made me slow down and help me reconnect.

I can’t wait to read her book.

Faith · family · flowers

Christmas Flowers

Sally5 Comments

img_1016On Sunday the pastor announced that anyone who wanted Poinsettia or cyclamen was welcome to take plants home. The front altar had been filled with plants for the holiday season — so, so lovely.

The cyclamen on the piano had caught my eye. It was looking droopy and sad, kind of worn out. I understood how it felt.

We are invariably among the last to leave. Bud loves to visit with people and I try to wait patiently (albeit awkwardly). I watched plants leave the sanctuary, one by one, but so many still waited to be adopted. The cyclamen on the piano drooped even more. I  grabbed it and a poinsettia to take home before we left.

For my mother — you know? She loved plants. When she was alive, she always had Poinsettia at Christmas. Her Christmas cactus burst into bloom on cue with the season, as did her Crown of Thorns at Easter. It was magical.

Here is part of  a post I wrote nearly 5 years ago:

At the tower of Babel, God scattered the languages of the world, “so that they may not understand one another’s speech.” (Genesis 11:7)  But He left us some universal languages.

Music crosses cultures and generations.

Art speaks and moves me, though I may know not a word in the native tongue of the painter.

And flowers — God Himself uses this language to speak to us through their beauty.

Flowers may have been the language my mother understood best.  She worked tirelessly in her garden, weeding, tending, making it beautiful for all to enjoy.  Inside the house there was always something blooming — Poinsettia, Christmas cactus, Amaryllis, the crown of thorns, Easter lilies, mums.  She understood the language of the flowers and plants, and they understood her and responded.

As my mother descended into dementia, the plants in the house looked more and more sickly. Nearly all the plants eventually died. Her huge Christmas cactus and Crown of Thorns are gone.

As I left the sanctuary on Sunday holding my sad cyclamen, Bud noticed a healthy one in the vestibule. “Do you want this plant instead?” he asked.

“No,” I told him. “I want to try to revive this one.”

It’s amazing what a little water and sunshine will do.

img_1030

I used to tell myself that I had a black thumb and that I could never grow plants the way my mother did, but I understand better now. It’s not the color of my thumb, it’s the care and attention.

It holds true with plants.

It holds true with people.