Alzheimer · Alzheimer's · dementia · elderly · family · Leaning In · Life · Writing

The Feeder’s Table

This is a draft written February 6, 2015, pulled from the draft folder because of the RDP prompt word: tame


From across the room, I heard the man bellow, “NO!”

I had no clue what this was in reference to — he was across the room, after all, and I was attending to my mother in the midst of her ritual folding and unfolding of her mealtime protector (aka – bib) while waiting for the food to arrive.

A woman at his table shouted out, “SNOW!” It was snowing out.

She laughed at her rhyme, a dry cackle-y laugh, not because she was a witch, although it did make me think of one, but because she was very old and shriveled, and even her laugh bore witness to that.

“He said, ‘NO,’ and I said, ‘SNOW,'” she said gleefully, and it reminded me of the little “jokes” that first- or second-graders make, when the littlest thing sends them into gales of laughter.

However, the jokesters were across the room, while my mother sat at the feeder’s table, a table set aside for residents who need assistance with eating. She dines with five other ladies with dementia.

To my mother’s left is a dear lady that reminds me of a sparrow. Her voice is quiet and sing-songy. Sometimes she makes sense and sometimes she doesn’t, but I always have to listen very closely when she speaks. (Professor Trelawny)

Next to Sparrow is a woman with a chiseled angular face. (Professor McGonigle) She never speaks. She sits erect and stern, like a statue of a school matron staring across her desk at a wayward student.  However, I had met her many years before, when she was an OB nurse. She had come into my room after I had given birth to somebody because she wanted to tell me about my father.

“I remember your father’s first day at the hospital,” she said. “He came in toting a little black doctor’s bag. A little black bag!” She laughed when she told me the story, and her eyes twinkled with the delight of that memory. My father still has that black bag with its stethoscope, reflex hammer, otoscope, and other doctorly treasures.

To her left sits a white-haired lady whose dementia has a Dr. Jekyll-Mr. Hyde effect on her.  (Quirinius Quirrell) One minute she is sweet and the next she is spewing venom.

Next to Mrs. Hyde sits the newest diner at the feeder’s table. I’ll come back to her.

To Newby’s left is Mrs. Tiggywinkle, so designated because of her hedgehog hairdo.  Teens pay a lot of money and use a lot of product to get hair like hers, sticking straight up all over her head. My father has to repeatedly request that my mother’s hair get combed. Some of us are just stuck with wayward hair that no amount of combing can tame, and I suspect that’s the case with Mrs. Tiggywinkle.


The draft ended and I never finished it. I don’t remember who the person I called Newby is, so I can’t come back to her now. I don’t even remember the point of this story.

My mother died 9 months later.

Reading drafts and posts from that time in my life are interesting to me. I’m glad that I chronicled the journey.

Advice to anyone going through a stressful time: Write down what you see and hear and feel. It’s a gift to your future self.

aging · books · elderly · Life

Morning Reading

I start every day with reading. I’ve done that for most of my adult life, although what I read has changed over time.

These days I have four different books that I’m reading. It’s a weave, pulling threads from four different sources, and letting them intertwine. Sometimes it’s amazing how it works sometimes, the similarity between two disparate books.

This morning I was especially struck by that. I’ve been reading William Willimon’s book Aging: Growing Old in Church. I finally finished a very long chapter called “With God in the Last Quarter of Life” which was subdivided into topics like Grief, Church Participation, Being a Burden, Economics, etc. The last section was on Memory.

I cared for both of my parents as their memories shape-shifted and deteriorated. This section of the book hid hard and hit home as I remembered that period of time in MY life. Here are a few quotes:

Compare/contrast/weave those words in with these words from Brian Doyle. I’m reading his collections of essays called Eight Whopping Lies and other stories of bruised grace. Today’s essay was “What Were Once Pebbles Are Now Cliffs” in which he remembers his sons when they were the size of pebbles; now they are cliffs.

It’s good to be reminded that I am not the sum of my efforts, my attainments, my possessions. Every day is a gift. And memory is also a gift.


This post is brought to you by Linda Hill’s Stream-of-Consciousness Saturday, William Willimon, and Brian Doyle.

A to Z Blogging Challenge · elderly

B is for Boredom

You can be bored by virtually anything if you put your mind to it… To be bored is to turn down cold whatever life is offering you at the moment. It is to cast a jaundiced eye at life in general including most of all your own life. You feel nothing is worth getting excited about because you are yourself not worth getting excited about.

~~ Frederick Buechner, Whistling in the Dark


I can honestly say that boredom has not been a part of my life. Instead of nothing to do, I have a thousand things to do and not time enough for them all.

I liked this quote because it reminded that the people who are bored are simply not engaged in life. I think about the pall of depression that can settle over our elderly who are in long-term care settings. It’s hard to be engaged there — but a visit from a friend or family member can brighten a whole day. It sparks memories and conversation. It reminds them that are loved and remembered and valued.

elderly · Life · people · Writing

Out of the Hole

First, let me just say HOLY COW!! WRITING ONLY 23 WORDS IS A CHALLENGE!!

There. Got that off my chest!

I was thinking about Sabbaths and how we need to take breaks — regular breaks — from hard things. There’s discipline and then there are nutso compulsions. I work at a gym, so I see a lot of those people who are very disciplined about their training, but I also see people who compulsively overtrain to a point where it’s pretty unhealthy.

Writing 23 words is not unhealthy. It’s hard, though! But I decided that I would be disciplined about it six days a week and on the seventh I would blather. Uncontrollably blather. And use Linda Hill’s Stream of Consciousness (SoCS) writing prompt as my excuse.

Today’s prompt: “out of the box.” This isn’t really an out of the box story, but it’s the first thing that came to my mind so I’m going to run with it.


Over the last few weeks I have found myself.

I know that sounds ridiculously pop-psychology 1980s, but when you’ve lost yourself and found yourself again, it’s kind of amazing.

For my regular readers, remember when I wrote this post: What’s Your Goal? I was incredibly frustrated by someone trying to help me by asking me about my goals. I was too lost in the darkness of a deep forest of I-don’t-know-what to even understand that question.

Fast forward to maybe two weeks ago.

No wait — in the intervening time — about 9 months — I took on some new duties with my job. I’m helping bring some senior programming to the facility where I work. To do that, I’ve been working with a woman who has been running a senior program at another location. This past Thursday, January 5, was the big day of inviting seniors in for an Open House.

Like I said, leading up to it, I’ve been meeting regularly with a woman who has been doing this job elsewhere. We’ve discussed rooms to hold events and places to store materials. We’ve discussed personnel to be involved and practical safety issues for the population we’ll be working with. It’s all been so good.

Then the lightbulb went on a couple weeks ago. I was talking to one of my daughters about it, about a few ideas I had. Specifically, I said, “We should have a ‘Bird’ month of programming. We could have one of the artists lead an art project involving birds. We could maybe build some birdhouses, We could have someone speak on backyard birding and ways to attract birds.”

I was on a roll and getting excited as the ideas started to flow. “We could go out birding. We could get out the badminton nets if people wanted to hit the birdie back and forth.”

“Mom,” my daughter said, “this is what you do.”

And she was so right. I’m an idea person.

That free flow of ideas had been so stuffed in for so long, for so many reasons.

Not everyone likes idea people. One of the people I work with is an idea-shutter-downer. “Stay in your lane,” she said to me when I made suggestions.

Truly I have been clogged.

Out of the box may not be the right term for what I’m feeling.

Maybe out of the dark forest. Or out of a hole.

I feel alive again. The Open House was a HUGE success.

What’s my goal? To use my unique giftedness to serve other people. I LOVE doing that. Now I have an outlet for it with the senior programs where I work.

A to Z Blogging Challenge · elderly · family · Grief

Blessed Are Those Who Grieve

It has been three and a half years since my mother passed away.

A few weeks ago my father wanted to visit my mother’s grave. In the first year after she passed, I had tried several times to get him to go.

His way of dealing with grief was avoidance.

I would ask him if he wanted to bring flowers to her grave. He wouldn’t hear me.

I would ask again. He would change the subject.

I would ask again. No response.

On the first anniversary of her death, I bought a small pot of pansies and asked Bud to drop my father and I at the cemetery before church. Slowly we started down the path, but when it came time to turn towards the Columbarium, my father picked up his pace and headed straight for the church.

Alone I set the flowers I had bought for her at the base of the Columbarium,

The Columbarium

Blessed are those who grieve.

Jesus said, Blessed are those who mourn, for they shall be comforted.

The difference between grieving and mourning is this: grief is private, but mourning is the outward expression of grief that allows a person to move forward.

Grief is the emotional reaction to a loss, while mourning is learning to live again.

Grief muddles the mind, but mourning begins to put things back in place.

Grief is the raw emotions that say things will never be right again.

Mourning reflects on what was and what will never be again, and then works to  deal with that void.

About a month ago, my father asked to bring flowers to my mother’s grave.

“Can I see where she’s buried?” he asked.

He didn’t remember ever going there before, so I showed him pictures from her interment.

The avoidance had finally passed. He was ready.

I purchased a bouquet and tied an orange ribbon on it. My mother always liked orange.

We drove to town and I parked as close as I could to the Columbarium. He picked his way along the dirt and gravel path that led there, struggling with his walker, while I struggled to hold the bouquet and keep my arm supporting him.

Silently we stood before the gray granite corner of the Columbarium.

“Is this it?” he asked.

“Yes,” I said, and showed him my mother’s name carved in the granite.

He wept.

“Can you take a picture of it?”

I did.

 

Blessed are those who grieve, for they have loved deeply.

And blessed are those who mourn, for they shall be comforted.

A to Z Blogging Challenge · elderly · family

Blessed are the Advocates

Blessed are the advocates
and the whistle-blowers
for their shaky-kneed courage.
They shall hear the words,
“Well done, good and faithful servant.”


A week or two ago, a friend posted an urgent prayer request. She had reported an abusive situation and was summoned to a meeting with the higher-ups of the organization.

She had posted her prayer request the previous night but I didn’t see it until early in the morning.  I had just finished my prayer and reading time so the Beatitudes were fresh in my mind.

I prayed for my friend, and for the abused and the abuser, for the meeting. I felt overwhelmed with emotion for what she had ahead of her that day.

In a comment to her post letting her know that I was praying, I wrote the beatitude above.  I knew that if I was in that situation I would need to be reminded why I’m doing what I’m doing. It’s so much easier not to stick your neck out.

But God calls us to care for the least of these and to advocate for the person who can’t advocate for themself.

I’m sure He will someday say to her, “Well done.”

Both the young and the old — and even some in between — need advocates.

 

dementia · elderly · Life

Update on Dad

I realize that I sidestep the issue all the time, dancing around, skirting the elephant in the room.

It’s far easier to talk about the brindle boxer that is about to be euthanized than it is to talk about my father.

“How’s your father doing?”

Golly, how many times a week do I hear that question? It’s such a kind question, too, coming from a sincere concern for a man who touched so many lives.

This road only goes in one direction, I want to tell them.

But I don’t.

Usually.

He’s having more trouble with incontinence, I think to myself, but don’t say.

That’s not the kind of thing one talks about in the lobby of the gym or the checkout of the grocery store.

He needs help getting dressed.

He’ll spend ten minutes scraping an empty bowl after lunch; he can’t stop himself from pursuing every last bit of soup that may remain.

He spends hours at his dresser, rearranging his military insignia and lapel pins and tie bars.

He has taken to sorting cards. At first I thought he was playing Solitaire, but it’s actually a sorting exercise and I marvel at the way he pushes himself.

He’ll have half a dozen books piled on the tray table next to his chair, but he’ll still scan the bookshelves and pull off another with that so-many-books-so-little-time mentality.

Even though he can still read, I don’t think he gets the sense of what he’s reading.

His favorite book to read: The Oxford Dictionary.

The dictionary that his father gave him before he went to college still sits on a shelf here. A few months ago, my father pulled it off and said to me, “We should probably get rid of this. It’s falling apart.”

But I know why he kept it all these years — and I’m not going to throw it away.

Some things you hold onto, and clasp to your heart, even though they’re old and falling apart.

“How’s your father doing?”

“He’s happy,” I tell them. “I’m so glad we can keep him at home.”

And they pat me on the arm, or look knowingly at me, and smile.

“Thanks for asking,” I say.

It’s nice to know people care.

elderly · Travel

The Lucky One

I was sitting at the train station in Charleston, South Carolina.

The evening was a balmy 60-something — balmy in comparison with the 30-something I left behind in New York that morning. The station was clean, well-lit, and sparsely populated. I sat on a blue bench playing word games on my phone while waiting for Mary’s train to arrive.

“Last time I rode this train, it was an hour and a half late,” a man said. I looked up to see a wiry African-American man with gray bristle-y hair poking out from the edges of his Kufi. “Folks waiting for me in Savannah had to change their plans all around because of this train.”

I just smiled at him. My train experience is pretty close to nil.

A few minutes later my daughter texted me from the train. “Conductor says we should be in Charleston around 8 – 8:15.” Over an hour late.

Image result for north charleston train station
North Charleston train station, photo from abcnews4.com

The man was pacing the train station. On his next pass near me I told him what Mary had said.

He shook his head and sat down beside me. “This train never runs on time,” he said.

How we got from there to where our nearly hour-long conversation took us, I don’t know. Before I knew it, he was telling me about “Mama.”

“I was the lucky one,” he told me. “I took care of Mama. They was eleven of us, and I was lucky number nine.”

He shook his head and smiled, a gesture he repeated often as he remembered his mother.

“Mama was smart. She got her degree in journalism. You better believe we learned how to write. She and Daddy sent us to parochial school in New York — all eleven of us.”

I thought of how my parents valued education. My grandfather, my father’s father, never went to high school, but each of his children went to college and graduate school.

“Mama worked for Richard Nixon. She helped with his campaigns in New Jersey and he gave her a job with the federal prisons there.”

My father loves to tell people how he met Haile Selassie. Rubbing shoulders with the mighty.

“When my daddy was dying, he called me to his bedside. ‘Ali,’ he says, ‘Ali, you take care of your mama.’ I said to him, ‘Daddy, of course I’ll take care of Mama.’ But he says, ‘No, I mean it — you really take care of Mama.'”

He shook his head and smiled. “I was the lucky one.”

My father outlived my mother — but I watched him take care of her and I helped where I could. Making sure my mother was well-cared-for was a priority.

“I moved in with Mama.”

I moved in with my father.

“Mama fell and broke her femur. The doctors wouldn’t operate. They said nobody would operate on her. She was too frail. 90 years old. 90 pounds. All they give her was morphine to ease her pain. That was her last month alive. I kept her in her own home.”

We aren’t there yet. I try not to think about my father’s last days.

“I give the eulogy at Mama’s funeral. I look over at my brothers and sisters boohooing, and I said, ‘What you boohooing about? You didn’t come see her. You didn’t take care of her. You just feeling sorry for yourself.’ I said that to them. And they was mad. Hoo-boy! They was mad.”

He chuckled a little to himself. “But, you see, I was the lucky one. I got to care for my mama. When she died, I didn’t cry. I had given her everything I had.”

No regrets living — I could relate to that, too.

I’m thankful that my family pulls together. My siblings help — but I know that I’m the lucky one, too.

The train pulled in to the station and we both stood.

“Been real nice talking to you,” he said, and he extended his hand to me. “I’m Ali.”

I already knew that.

“I’m Sally,” I said, and shook his hand.

“Been real nice talking to you,” he said again.

It had been real nice listening.