Leaning In · Life

Delight

It was a cold day
A cold day in upstate New York

Yesterday was a rush-rush day. I had too many things to do in the available hours.

Around 4:30 PM, I made a quick run into the grocery store. The wind was gusty and frigid as I dashed for the door.

In between the open doors a woman stood calling back over her shoulder, “Come ON!” The exasperation was clear in her voice. She pulled her coat tight around her, flipping up the lapels to block the wind.

As I got closer I could see who she was talking to. A little girl, maybe 4 or 5 years old, was in the estuarial space of warm and cold, the space where shopping carts and bottle return machines exist, between the two sets of automatic doors. She had her back to her mother, her hands over her head, fingers extended and wiggling. She crouched and wiggled her bottom a little before jumping up with excited squeals.

She was watching herself on an overhead monitor that showed all the people entering and exiting the store.

“She thinks she’s on tv,” her mother said to me, and rolled her eyes.

I laughed — delighted by the child’s delight. The girl continued her dance, crouching then jumping, waving her hands and arms, giggling and squealing all the while.

Her mother smiled back at me.

For just a moment the two of us watched together.

Then I went in, grabbed the groceries I needed, and headed for the check-out.

I was still smiling when it was my turn to pay.

I was still smiling when I got home.

Two observations I’d like to make:

  1. Delight is contagious. I’m glad the little girl shared hers with me.
  2. Leaning in and slowing down can be as simple as a momentary pause at the grocery store.

 

 

elderly · Leaning In

At the Post Office

Painting at the Fenimore Art Museum:  Village Post Office, 1873. Thomas Waterman Wood
Painting at the Fenimore Art Museum: Village Post Office, 1873. Thomas Waterman Wood

I stood in a very long line at the Post Office yesterday.

Post Office line definitions for a small town:

  • No line = go directly to the counter
  • Brief wait = someone already at the counter
  • Line = someone waiting, someone at the counter
  • Long line = 2 someones waiting, someone at the counter
  • Very long line = more than 2 people waiting in addition to the person at the counter.

Yesterday, when I first got there, a young couple was at the counter mailing several packages. They held whispered consultations with each other about every package. I think the cost was more than they expected. When the clerk announced, “That’ll be $79.50,” they looked at each other briefly before she swiped a card and they were done.

I still had two people ahead of me, but three or four people now stood behind me in this very, very long line.

The elderly woman at the front of the line approached the counter. She placed two packages on it.

“This one is FedEx,” the clerk said. “I can’t take it here, but you can mail this other one.”

“What?” the woman asked.

The clerk spoke slowly as she repeated in a louder voice, “This package goes to FEDEX. You have to take it down to THE COMMONS. But I can help you with THIS PACKAGE.”

I couldn’t hear what the elderly woman said, but I watched the postal clerk’s face soften.

“Let’s look at this one,” the clerk said, holding the FedEx mailer. “I don’t handle these but I think we can figure it out.”

She read aloud the instructions on the FedEx slip.

The man behind me groaned and left.

The woman ahead of me looked at me, shrugged, and followed him with her eyes out the door.

“You need to sign HERE,” the clerk was saying, “before you put it in the DROP BOX.”

The elderly woman said something.

“THE COMMONS,” said the clerk. “You know, THE SHOPPING CENTER SOUTH OF TOWN.”

The woman nodded and asked something.

“THERE’S A DROP BOX. YOU JUST HAVE TO PUT YOUR PACKAGE IN,” the clerk explained.

The door opened and closed several times over the course of this, each time bringing a wintry draft. I could feel the people behind me shuffling their feet and shifting packages between arms.

The clerk was remarkable — so pleasant, so patient, so unperturbed by the growing line. She took care of the package that was being mailed postal service and reminded the woman again where she needed to take her FedEx package, before turning her attention to the next person.

In this year of “Leaning In“, I knew that I needed to be more like the postal clerk. Too often I have been like the man who left, feeling the tick-tick-tick of time slipping away.

I don’t have time for this, I tell myself — but, really, what is so pressing?

Life is too short to rush through it.

Yesterday I learned something from an elderly woman who didn’t understand the difference between FedEx and USPS, and a postal clerk who took the time to help her.

I wonder what I can learn today if I slow down.

 

family

Pursuing Dreams

I remember when Sam learned that he had arthritis.

He had been struggling with shoulder pain and gone for treatment for tendonitis, a common problem for swimmers. He couldn’t lift his arms over his head and the physical therapist commented that he was like an old man.

Fortunately, someone recognized that Sam had a bigger issue than tendonitis — a “more global problem” is how they put it.

After running a bunch of tests, they gave him the life sentence — psoriatic arthritis.

“What am I going to do?” he asked. “I won’t be able to do the things I love.”

By that he meant climbing, paddling, skiing and all sorts of other outdoor activities. Sam was tempted to throw in the towel.

His rheumatologist looked him in the eye and said, “It doesn’t mean that at all.” He encouraged Sam to pursue his dreams.

And Sam did.

That was ten years ago.

The first time we went to British Columbia, I knew Sam would thrive there.self-in-bc

img_0553Honestly, I wasn’t surprised when he wanted to make it his home.

And found a lovely Canadian woman to marry.

When Sam was home at Christmas, he mentioned going to “physio” — that’s Canadian for physical therapy. He works at a canoe and kayak store, and has recently been having trouble lifting boats over his head.

Instead of giving up, he’s working (again) at strengthening those shoulders.

Professional golfer Phil Mickelson is the poster boy for psoriatic arthritis.

I think Sam should be — his story is more inspiring.

To me, anyway.

But I may be biased.

 

Alzheimer's · Book Review · family

The Benefits of Rust

Remember when I said I would be rusty trying to write again? I was feeling that rust this morning as it seized up my writing gears.

Today I wrote a whole post, deleted half of it, wrote a little more, made a meme, considered dropping the whole thing in the trash, and then decided to just stick it in a draft folder. Here’s the meme, though —predictable

Then I looked back to see what else I had written on this day in history.

Five years ago, I had written a book-review-ish post for a fellow blogger, Christine Grote. We had started blogging about the same time and visited each other’s blogs fairly often. Each of us was dealing with Alzheimer’s — me with my mother and her with her father.

We cross paths with so many people, especially in the blogging world. When I visited her blog today, I felt like I was visiting a long-lost friend.

Here’s part of what I published 5 years ago —

Dancing in Heaven — a sister’s memoir is a tender story of growing up with a severely handicapped family member.  Christine’s sister, Annie, was so developmentally handicapped that doctors predicted she wouldn’t live past the age of eight.  Through the love, devotion and tireless care from the whole family, Annie lived to be 51.

Christine weaves into the story the onset of her father’s Alzheimer’s.  That’s what I had been following on her blog.  Before Alzheimer’s, however, she had interviewed her parents about life with Annie.  When she asked her father if he had any regrets, he said,

“The biggest regret I’ve got of the whole thing is that she cannot speak.  Everything else I can deal with pretty much as it comes along.”

As I read that part, I felt a catch in my throat.  His Alzheimer’s has taken away his ability to speak.

Alzheimer’s seems to affect people in very different ways.  Some symptoms are universal — the loss of memory, for example.  But my mother has not lost her ability to verbally communicate.  She can be sharp-tongued and nasty.  She can definitely communicate.

2017 note: My mother did eventually lose the ability to communicate. She rarely spoke near the end, and when she did, it made little sense.

Christine’s father has fallen into a silent world.  He doesn’t speak often.  As I read his quote about regrets in Dancing in Heaven, I remembered one of Christine’s posts about a communication break-through they had experienced using a whiteboard, Resolving a Quandary.  How much more meaningful that post became knowing how precious that ability to communicate was to him!

Thank you, Christine, for your beautiful memoir.  It is sweet, gentle, and encouraging.

In the intervening five years, Christine’s father passed away as has my mother. Today, when I visited her site, I saw that she had completed her book about her father, Where Memories Meet.

I guess rust can sometimes be a good part of the adventure. It made me slow down and help me reconnect.

I can’t wait to read her book.

Faith · family · flowers

Christmas Flowers

img_1016On Sunday the pastor announced that anyone who wanted Poinsettia or cyclamen was welcome to take plants home. The front altar had been filled with plants for the holiday season — so, so lovely.

The cyclamen on the piano had caught my eye. It was looking droopy and sad, kind of worn out. I understood how it felt.

We are invariably among the last to leave. Bud loves to visit with people and I try to wait patiently (albeit awkwardly). I watched plants leave the sanctuary, one by one, but so many still waited to be adopted. The cyclamen on the piano drooped even more. I  grabbed it and a poinsettia to take home before we left.

For my mother — you know? She loved plants. When she was alive, she always had Poinsettia at Christmas. Her Christmas cactus burst into bloom on cue with the season, as did her Crown of Thorns at Easter. It was magical.

Here is part of  a post I wrote nearly 5 years ago:

At the tower of Babel, God scattered the languages of the world, “so that they may not understand one another’s speech.” (Genesis 11:7)  But He left us some universal languages.

Music crosses cultures and generations.

Art speaks and moves me, though I may know not a word in the native tongue of the painter.

And flowers — God Himself uses this language to speak to us through their beauty.

Flowers may have been the language my mother understood best.  She worked tirelessly in her garden, weeding, tending, making it beautiful for all to enjoy.  Inside the house there was always something blooming — Poinsettia, Christmas cactus, Amaryllis, the crown of thorns, Easter lilies, mums.  She understood the language of the flowers and plants, and they understood her and responded.

As my mother descended into dementia, the plants in the house looked more and more sickly. Nearly all the plants eventually died. Her huge Christmas cactus and Crown of Thorns are gone.

As I left the sanctuary on Sunday holding my sad cyclamen, Bud noticed a healthy one in the vestibule. “Do you want this plant instead?” he asked.

“No,” I told him. “I want to try to revive this one.”

It’s amazing what a little water and sunshine will do.

img_1030

I used to tell myself that I had a black thumb and that I could never grow plants the way my mother did, but I understand better now. It’s not the color of my thumb, it’s the care and attention.

It holds true with plants.

It holds true with people.

dementia · Faith · family

If You Say So

The following is an edited version of a post first published on January 2, 2012. I wrote it when my mother was still living at home and I was trying to help my father with her.

My sister and I can carry on conversations using just things my mother says.

For instance, my mother often says, “If you say so.”

Making the sandwich #1This is usually in response to something she doesn’t believe to be true.  Like, she’ll be preparing a meal for, say, 150 people.  (150 is her favorite number.)  I’ll say to her, “Mom, there are only going to be five of us for lunch today — You, me, Dad, Mary and Laurel.”

She’ll look at me with a look that says, I don’t believe a word of that.  But out of her mouth will come the words, “If you say so.”

It’s a phony acquiescence.  She’ll continue right on making 150 sandwiches.

Or, she’ll be getting ready for church, and I’ll say, “Mom, today is Tuesday.  There’s nothing going on at the church today.”

She’ll answer, “If you say so,” and then continue getting ready for church.

She started saying it as a cover for her memory loss.  It was easier than arguing.

The reason I wanted to start off the new year with those words, though, is because they tie in so beautifully with something else I’ve been thinking about.  I’ve been thinking about how the earthly life of Christ was book-ended with two statements of yielding.

First, when the angel told Mary she was going to have a baby, she responded with,

Behold, I am the servant of the Lord; let it be to me according to your word.

Luke 1:38

I’m quite sure there must be a translation out there that translates her words as, “If you say so,” not in an I-really-don’t-believe-a-word-of-it way, but in the way I would like to be able to say them to God. A yielding.

When Jesus was praying in Gethsemane before his death, he said these words,

Father, if You are willing, remove this cup from me.  Nevertheless, not my will, but Yours, be done.

Luke 22:42

Can’t you just hear the “if you say so” in there?

“Father, take this cup away from me, but, if you say so, I’ll do it.”

When God asks me to go through something, I’d like to be able to say, “Okay, God, if You say so.”

I want 2012 (and now 2017) to be an “If You Say So” kind of year, a year of yielding to the Father’s will.  I want to be like Mary and Jesus,  who, facing trials and uncertainty, still trust God’s overarching plan.

However, I want to be sincere in my words — not like my mother  just saying words to smooth things over.

If you say so.

Simple words from a person with Alzheimer’s.

Words also to live by.

Faith · family · Writing

Leaning In

“What’s your theme for 2017 going to be?” my friend asked.

I could barely remember what my theme for 2016 was. If 2015 was hard with the death my mother, 2016 was … um… I don’t even know. Rich? Full? Exhausting?

And where did 2016 even go? A snap of the fingers, and — poof! Good thing this isn’t a 2016 recap because I can’t remember.

My life is rich and full, mostly because of these people —

img_0990-2
Christmas 2016
Starting on the top step — Amanda and Philip
Owen and Emily
Sam and Donna
Me and Bud
Jacob, Helen, and Laurel
Karl, Henry, and Mary

But my 2017 theme is coming from the exhausting part of my life.

My theme is “Leaning In” — the idea of embracing my challenges.

On Christmas Day,  I was standing in the laundry room, seeking solitude and a brief escape from an irritating situation, Helen asked if she could help.

“What can I do about this?” I asked her and told her what was bothering me.

Among her suggestions — write it out.

Write it out.

That’s why I had started this blog in the first place — to make sense of the difficult, to find good in the bad, to untangle the knot — all by writing it out.

So — leaning in. In 2017 I am going to lean in — and part of my embrace will be to write again here.

I thought of three general concepts that relate to leaning in —

  1. Leaning in, as a horse leans into a harness to pull a heavy load. Head down, not high and haughty. Muscles straining– it is hard work. Moving forward, little by little, not giving ground, but gaining and pressing on.
  2. Leaning in, as in a team huddle. Sharing strategies. And concerns. Supporting others — and they supporting me. I can’t do it alone.
  3. Leaning in, as one paying attention to detail. I can’t gloss over things, nor do I want to. Little things are sometimes so much more important than big — and I need to remember that.

Specific goals for 2017 —

  1. Postaday — I’ll write again (or try to), but I may also dust off old posts that I have taken down. My daily posts will be a mix of old and new.
  2. People — I need to cultivate relationships with people who can be part of my team huddle. Again, I see this as a mix of old and new. Friendships needs attention and time. I need to reach out to others on a regular basis — get together with other people, share joys and sorrows, pray, laugh, eat, walk, send cards, write letters, talk on the phone.
  3. Pursue beauty — I toured the Lackawanna Coal Mine once. It was dark and scary, but men found something of value there. Same with my life. I need to look for those places of beauty and goodness. They’re there. I know they are.

So forgive me if my writing muscles are a little rusty. It may take me some time to get my groove back —

But 2017 — here I come.

family

Moving On

“He was my mentor,” she said to me as she gave me a hug. “If there’s anything — really anything — I can do, don’t hesitate to call.” She was a woman doctor, a little older than me, who had known my father for many, many years.

I couldn’t respond. My eyes well up with tears at the slightest provocation these days.

This past Sunday in church, I stood in the communion line behind an elderly couple, he supporting her down the aisle, waiting for her to dip her bread in the cup and get it into her mouth before he took his. I felt the tears.

Then it was my turn. “The body of Christ broken for you,” said the pastor as he extended a chunk of bread toward me. My friend held the cup. I think she said my name as I dipped the bread. I was too busy trying to blink back tears to really hear.

Christ’s ultimate sacrifice of Himself, remembered every time we eat the bread and drink the cup, is echoed in the smaller self-sacrifice of the couple in church and the multiple self-sacrifices I saw as my father cared for my mother over the last years of her life.

When she thought that he was her father and argued with him about waiting for her date to pick her up for the dance, he seem unfazed. It had to have hurt — his wife not recognizing him and waiting for another man.

When she wouldn’t sleep in the bed with him — she sat in a chair all night, because there was a strange man in her bed.

When she served him inedible foods.

He patiently coaxed her to do the right things and kept her safe from the wrong things.

He learned to do new things — laundry and cooking — that had been her domain.

He finally made the difficult decision to place her in a nursing home.

Then he visited her every day. Twice a day.

These days, I have so many people offering advice.

“Just march right in and stand there with your arms crossed,” one person said as I told him about a deplorable incident at the nursing home where my father is staying for rehab.

“You can’t bring him home yet,” another person said. “You need to take care of you and get some help set up.” And she is so right.

“Isn’t it time,” asked another friend, “to think about permanent placement?” No. No, it isn’t.

My father was my mentor, too. He taught me what it meant to care for the elderly. Partly through having me work at a nursing home when I was young, but mostly through his example, his constancy with my mother.

When I hit a roadblock these days, I try to think, how would he handle this?

I can’t ask him anymore. That hurts just to write it down. But his advice-giving days are past, and it’s up to me and my siblings to figure this out.

How do I care for an aging parent? One who argues and cajoles and insists that he’s fine. One who falls and faints and forgets how to shave. One who all his life has cared for other people.

I think that the answer is one day at a time.

Looking too far down the road is scary.

For now, I’ll work to get him home again, and then work to care for him. One day at a time.

IMG_9693
At the Fenimore Art Museum this summer

I began this blog when I was helping to care for my mother. It was my formal extensive education in elder-care, given by the best teacher, my father.

Now, I’ve taken the fallen mantle. My role has shifted to becoming the primary care-giver.

And I need to set Hot Dogs and Marmalade to rest. Over the summer, I have felt this blog hanging there, waiting, waiting.

But I can’t write about him.

Not here.

Not now.

Faith · family

Graceball

 

IMG_8900Cleaning off the shelves in my father’s study reminded me of the things he loves to read about — history and baseball. The older I’ve grown, the more I’ve loved reading about those things as well.

I’ve always loved reading about baseball. Not modern baseball, but the old days. Like the deadball days in The Glory of their Times by Lawrence Ritter, one of my favorite baseball books ever. Or the Brooklyn Dodgers. Or the Negro Leagues, both awful and beautiful.

So I grabbed a book on my dad’s bookshelf called The Teammates by David Halberstam. It’s a story about the enduring friendship between four ballplayers: Ted Williams, Bobby Doerr, Dom DiMaggio, and Johnny Pesky.

Ted Williams was one of my father’s heroes. An unlikely hero, in my mind, because he was a hero with baggage. He was foul-mouthed and arrogant. Loud. He wasn’t gracious, wouldn’t tip his cap to the crowd, even in his last game, at his last at-bat, where he nailed his last home run.

John Updike, in Hub Fans Bid Kid Adieu, said about Ted Williams, “Gods do not answer letters.”

But Ted Williams could hit the ball.  Lou Boudreau came up with the Williams Shift for a reason. Why Ted Williams, in that instance, didn’t follow Wee Willy Keeler’s motto — “Hit ’em where they ain’t” — is a mystery to me.

The Teammates softened my thoughts on Ted Williams. It showed a more human side to him.  One Ted Williams story lingers with me.  In the words of Bobby Doerr  —

“… and when lunch was over Ted turned to us and said he wanted to take and show his dad’s photography shop.  And so we went across the street from the hotel, and there was a building there, all the offices empty now, nothing there but an empty building. Then he began talking about his father, who had not been successful, was out of work a lot, and had been drinking a lot. And as he talked you could just see it roll out, this little kid in this terrible world, all the unhappiness, all the things which had never gone away, and which had been stored up for so long. It was clear that his dad had never been there for him.  And then when we came out he took us to this nearby corner, and he said, ‘This is where my mother made me march with the Salvation Army, and I would try and hide behind the bass drum.’ As he talked I could see it all, the little boy back then, the shame, and the pain, and the broken home, and how much he hated all of it. As we were walking around, and he was letting us into his childhood, I was thinking to myself, ‘This is where it all started.’ I’ll never forget that day when he took us around because all you could feel was the sadness of it. The sadness of that little boy, and the sense that it had weighed on him so heavily for so long.”

As I read that story i understood better how baseball is a game of grace. The very best players fail two-thirds of the time when they get up to bat. A batter is allowed three strikes. A pitcher is allowed four balls. A team three outs.

Baseball is not like the pure athleticism of a race, where the first one to finish wins. It’s a game of trying and trying again. Perseverance. Moving on past a failure. And another failure. And another failure. Grace.

The whole game is grace. There’s always another pitch, another at-bat, another game, another season.

It’s why the battle cry of the Red Sox — “Wait till next year” — rings true.

Hope is a cornerstone in baseball. It exists at every single base.

*****

Today my daughter Mary follows in my footsteps (and her aunt’s) by starting a job at the Baseball Hall of Fame.

When combined with the Daily Prompt: “Childhood”, and the fact that this post turned up when I did a draft folder search of that word, you can understand why I’m posting this today.

Originally written last October. Never posted till now.

family · poetry

The Wreck of the Eliza

 

An original Sea Shanty

Not the Eliza, but maybe similar

(1) Captain Hopkins had a schooner
Eliza was her name
Come hear the story of her wreck
“tis such a crying shame
She sailed out from Hyannis
In April 1899
Heavy seas when she departed
Though the morrow’s forecast fine

(2) Captain Hopkins had a worthy crew
Of 13 men with him
Many were related,
Brothers, cousins, kin —
Eliza had been prosperous
So the Captain laid aside
Money to soon build a house
For his sons and his bride

(3) Eliza made a quick run
Through Nantucket sound
The Great Round Shoal lightship
They sailed right around
The night was clear, but a relic
Of the Northwest gale that day
Made the seas a little choppy
Still it did not cause delay

(4) Course was set for Great Rip
Also called Nantucket Shoals
Captain Hopkins knew his way
All around these fishing holes
Two men were on watch
When they hit the Rose and Crown
A miscalculated shoal
That brought their lady down

(Chorus)
Hey, there, Cap’n Hopkins!
Climb aboard wi’ me!
But – No-ho, he shouted,
The dory won’t survive this sea

Hey, there, Cap’n Hopkins!
There’s room for all aboard!
But – No-ho, he shouted.
And the pleas were all ignored.

(5) A wave swept o’er Eliza
From her stem to stern
She was broken with one pound
The surf was all a-churn
While some men grabbed the rigging
The dory was prepared
To launch for this emergency
That their lives would be spared

(Chorus)

(6) A wave swept the dory
Right off the deck
Three men fought to right her
And keep her by the wreck
“Come on board,” they shouted
To the remaining crew
Cap’n, he refused to go
And the others followed suit.

(Chorus)

(7) The dory, she was stove in —
Two men rowed, the other bailed
And they stayed right near Eliza
To save the crew, but failed —
The onboard crew refused them
“That dory is too small
Dawn will be here soon
We’ll be seen and save-d all.”

(Chorus)

(8) The men in the dory
Stayed the whole night through
Listening, hoping, praying
To know what they should do
But when dawn’s rays illuminated
Here’s what met their eyes:
The schooner gone to pieces
And nobody survived.

(Chorus)

(9)They rowed that broken dory
Through the Rose and Crown
Bailing water constantly
Till they came in sight of town
And so these three were rescued:
Nickerson, Miller, Doane,
But oh, dear Captain Hopkins –
Why didn’t you come home?

(Chorus)

*****

Based on the true story of my great-grandfather, a fishing boat captain who died at age 37, going down with his schooner, the Eliza.