dementia · family

Remembering Birthdays

Threshold 085
At Laity Lodge

Three years ago for my birthday I was in the wilds of the Texas hill country, without cell coverage and with minimal wifi. Laity Lodge is great that way because it allows guests to make real connections.

But it was my birthday and I don’t think anyone there knew.

Not that it mattered, of course.

I called my husband on a land-line and talked with him and the kids. It was enough.

Stewart
Stewart

He told me that my brother Stewart had called and wanted me to call him back.

When I got home, I put off that call.

My brother died from a heart attack 11 days after my birthday.

When did I last hear his voice? I don’t know.

In my mind I can still hear him, though. I remember what my name sounded like when he said it. I remember his laugh.

Mom February 2015
Mom February 2015

My mother forgot my name altogether. I used to remind her.

“I’m Sally,” I would say, and she would repeat back, “That’s right. You’re Sally.”

I used to use photographs to help her remember the names of family members, naming each person as we touched them in the picture. She eventually couldn’t do that either.

I don’t remember the last time she said my name.

And I have more trouble remembering her voice — maybe because it turned dry and creaky. She didn’t sound the way I wanted to remember her.

This year for my birthday, I heard from all my children — most with a phone call or FaceTime. Mary, Laurel, Bud and I went to see La La Land and then went out to dinner. It was very nice.

My morning started with a birthday card in my coffee maker (from Laurel) and birthday stickers on the newspaper (from my brother).

I was curious to see what my father would say about the birthday stickers. I knew he wouldn’t remember my birthday without some sort of reminder.

“Oh! I see we have stickers on the newspaper this morning,” he said as he sat down at the kitchen table.

He peered at them closely.  “It says, ‘Happy Birthday,'” he read. “I don’t think it’s my birthday though.”

“No, Dad,” I answered, giving him his pills and his juice. “It’s my birthday.”

“Oh,” he said. “I guess that makes sense.”

IMG_9693And that was it.

No birthday wishes.

It wasn’t a slur against me. It doesn’t really matter.

But it did.

It does.

Because it means I’ve lost another little piece of him.

We lost my mother in dribs and drabs, an expression she used to use.

Now we’re losing my father the same way.

It’s almost certain that next year he won’t remember my birthday either. Dementia tends to only go in one direction.

I just hope he still remembers my name.

 

 

family

The Bathroom

She was waiting for me when I came out of the bathroom this morning.

No, no — not one of my children, although, as you can imagine that has happened to me more times than I care to remember.

Every mother quickly learns that the bathroom is a refuge.

Every child learns just as quickly that if he (or she) waits long enough outside the door, Mom will eventually emerge.

And she can hear you if you talk to her through the door.

If a sibling is being mean and Mom is in the bathroom, a note under the door will sometimes expedite her emergence.

But she may not be terrible happy about it.

Bathroom = Sanctuary

I imagine, if Quasimodo hadn’t had Notre Dame to carry Esmeralda into as he rescued her from the gibbet, if he hadn’t had that great cathedral to escape to, he would have found a bathroom.

I no longer have to use the bathroom as a hideout from my children, though.

Yes, young moms, your children will one day learn to leave you alone in there.

Or they will be so busy with their lives that they won’t care one whit if you’re in the bathroom, the bedroom, or any other room in the house. As long as they are fed and the wi-fi is working, the natives will not be restless.

img_1256Now I have a cat that waits outside the bathroom for me.

Yes, a cat.

She follows me around the house. Down the hall. Into the kitchen. Into the living room. Up and down the stairs — not on quiet little cat feet, like the fog, but thumpity-thumpity, like an angry rabbit.

She loves the bedroom where she can hide under the bed and pounce on my feet as I walk around it, straightening the sheets and blankets. I think she especially loves that she can still surprise me

I draw the line at the bathroom.

Her litter box is just around the corner. She likes to supervise my cleaning of it, patting her paws on the scooper as I sift the litter and, um, the other stuff.

But, no, I don’t want her in my bathroom.

It’s that sanctuary thing.

So she sticks her paws under the door a few times to let me know she’s out there and then she waits.

Do cats outgrow this sort of behavior?

Faith

Amy

Amy Gregory
Amy Gregory

One thing is for sure about Amy — she knows how to rejoice.

Easter with Amy is a joyful celebration complete with silly string, confetti, streamers, caterpillars-turning-to-butterflies, and the Hallelujah Chorus. It’s like glitter.

Anyone who has ever worked with glitter knows how impossible it is to clean. The tiniest bit used in a craft project will show up for the next week on the table, on hands, on clothes, on faces — everywhere!

But Amy — my heart was broken to learn that Pastor Amy is moving on to a new church.

When Bud and I made the decision five years ago to move from the non-denominational church we had been attending to the United Methodist church in town, we sat down with the pastor at our current church to let him know what we were thinking and doing.

“You know,” he said, “Methodist pastors only stay in a place about 7 years. They move them around.”

Pshaw, I thought.

That was not what I was thinking last night.

I can remember the first time I saw Amy. It was at Helen’s Baccalaureate service. Amy was put in an awkward position and handled it with such grace.

Get to know her, God whispered in my heart.

Um, God, maybe you didn’t notice — she’s a woman. A woman pastor? I responded.

Sometimes it’s funny the things God doesn’t notice.

Still He niggled at me — about Amy.

It was probably close to two years later that we started attending the church she was pastoring.

Can I be honest here? Amy and I probably don’t see every issue the same way.

But Amy is like glitter. She got on my hands and in my heart.

I see little sparkles in the darnedest places where Amy has left her mark.

I see many issues differently. I understand them differently.

I am more compassionate because I’ve known Amy.

My pshaw has turned to aww… to sadness. Sadness for a church that will feel her absence. Sadness for me because I like things to always stay the same, and I don’t like change, and I don’t want Amy to ever leave ever ever ever — even though we’re staying in Cooperstown most of these days and don’t even go to the church in Greene. I just want Amy to stay where I knew her forever.

But glitter.

It spreads. It sparkles. Spreads and sparkles, spreads and sparkles — showing up everywhere.

I guess it’s important for Amy to move on. Throw a little glitter around somewhere else.

I, in turn, will not try to get the glitter in my heart cleaned up.

I’ll proudly display it like a Grandma Moses snow scene — sparkling and joyful.

For Amy.

Faith · photography

Show Me Something Cool

I was clicking through all my pictures and almost clicked past it.

Another blurry picture, I thought.

I’m an expert at the blurry snapshot. In the days of film cameras, that talent was especially frustrating. I’d get back a whole roll of nothing but blur — and have to pay for it.

These are the kind of pictures I often take. I think this was supposed to be the reflection of the moon in a puddle. It was sandwiched in with a whole bunch of other moon pictures.  I remember that evening walk, seeing the moon’s reflection in a roadside puddle, taking the picture, knowing that I didn’t have enough light.

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Karl is playing tennis somewhere in this photo. In the days of film cameras, I would have thought that I somehow double-exposed, but I don’t think I can do that with my phone. I don’t know how it happened.dsc04086

At least in this blurry shot, there’s a sense of what the picture was all about. We were setting up the family photo at Christmas, arranging people on the stairs, and I snapped this. I love to catch my children laughing, and they were laughing at something here.  Something blurry.img_0988

This is the one I almost clicked past, but I paused and looked at it. It was a little ironic, because that’s what I did the day I saw it.img_1129

I remembered the day I had taken a walk in town. I parked in front of the library and before I started out, I prayed a little prayer Andrew Peterson had talked about once at Hutchmoot — Lord, show me something cool.

Because I walk the same route over and over, even though it’s Cooperstown and beautiful, I start missing the beauty and wonder of it.

Lord, show me something cool — and half a block later, there was this decapitated, one-legged Lego man, half on the curb, half in the street.

I stepped over it, barely noticing, and took about three more steps. Did I just miss something cool?

I walked back, took the not-blurry picture, and continued my walk, turning that little dead Lego man over and over in my mind. Should I have scooped him up and thrown him away? Should I have scooped him up and found a head for him? Should I have left him there for the street cleaner or another passerby, maybe even a child?

I did leave him there — but he didn’t leave me.

He reminded me of the hurting world we live in — a world of poverty, not just of material goods, but of the soul.

Where we fail to think of the other person.

Where we hoard all the things with which we should be generous.

Where we forget whence we came.

Lord, show me something cool.

Cool things come in unexpected shapes and sizes and places. A broken toy in the gutter can become a whole sermon.

Travel

Learning Croatian

I walk around the house these days repeating Croatian phrases, preparing for few days in Croatia this summer.

Dobar dan —  Hello (literally, good day)
and variations on that theme:
dobro jutro — good morning
dobra večer — good evening

The linguist in me — or the linguist wannabe — wants to take apart the words to understand the how. Clearly dobar means good.

So, if dobrodošli means “welcome”, does it literally mean “good welcome”?

Je li to u redu? —  Is it okay?

Oprostite —  Excuse me.

Rolling my r’s doesn’t come naturally or easily.

Plus I get frustrated not knowing the real names of the diacritical letters. I make up names for them in my head — s with a smile, c with a smile, d with a crossbar, etc. It’s dumb because the name of the letter doesn’t really matter — it’s knowing how to say it.

But I can’t say the lj digraph, no matter how hard I try. My tongue won’t cooperate.

And I often forget that the j isn’t pronounced as it is in English, French, or Spanish, but more like our y as in year.

Learning a few words in the language of the country I’m visiting feels like the respectful thing to do. I don’t want to rely on them to know English. It seems so… so… American.

Still, I have a feeling I’m going to need help.

pomoć — Help

Lots of it. A translator would be nice.

If I can learn to pronounce this correctly — gdje je kupaonica — where is the bathroom — I should be all set.

family

Messy

Messy is often the best.

One of my favorite Christmas traditions is decorating cookies. Our Christmas cookies are a basic sugar cookie cut out with cookie cutters. It’s actually my grandmother’s recipe, and the only recipe for which I always sift the flour. The fun is both in choosing which cookies to cut out and then finally decorating them.

But it’s messy and time-consuming.

The best.

The best icing is sometimes the messiest. Drippy, juicy, gloopy drizzle.

Licking fingers is allowed, but not licking brushes.
Licking fingers is allowed, but not licking brushes.

The best part is spending time together making them.

Decorating is a family affair
Decorating is a family affair

Or maybe it’s eating them.

Hard to choose which one...
Hard to choose which one…
family · Leaning In · photography

Play Your Game

I’m a fan of the synchronized sports shot.

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Karl (dark 14) and opposing 14 running for the ball

This is probably one of my favorite pictures of Karl playing soccer because he and the other player are right at the same place in their stride.

I loved watching Karl play soccer.

dsc01262
Karl and Michael — high school doubles

Tennis was fun, too.

Karl and Michael made a good doubles team. In the picture, they’re sort of synchronized — weight on the left foot, backhand ready.

They did pretty well at tennis — for a couple of soccer players. Against the odds.

I heard their tennis coach give them the same advice over and over that year. “Just play your game,” he told them.

“Their game” was a fairly simple one. Return the ball.

While their opponents were trying to put spin and speed on the ball, not always very successfully, Karl and Michael simply returned the ball. Over. And over. And over.

Sometimes it aggravated their opponents. You could see them thinking, What the heck?! These yahoos don’t know squat about real tennis.

But Michael and Karl knew how to return the ball.

When one of them tried to get fancy, it inevitably failed. Coach would call them over. “Just play your game,” he reminded them.

It worked until they encountered a team whose skill was so superior that neither of them could return the ball. (See “Laughter“)

Coach’s advice was such good advice.

Be you.

Lean in to your strengths.

Don’t worry too much about what others are doing.

Play your game.

Life · poetry

My Mother’s Voice

I can’t remember
The sound of my mother’s voice
Fresh grief at this loss


The telephone at my father’s house doesn’t work terribly well, and I want to try a new one, but I don’t want to lose his voice on the answering machine. Is it silly — the things we hold onto?

I really couldn’t remember my mother’s voice this morning, try though I did.

The crappy phone will stay.


I looked through the videos on my computer. Surely I had one with her voice.  I found a couple from two years ago when she was in physical therapy. She spoke three words total in six videos. Monosyllabic. “Yes.” “No.” “Missed.” That’s not how I want to remember her.

Towards the end of the video below, where we are singing the blessing over a meal, I can pick out her voice. It’s a good place to end.

“Amen”

family

Disappointment

I wrote this back in November 2013. I had been sorely disappointed with a concert I had gone to with Mary. Too much glitz, not enough real.

To be honest, I had forgotten a lot of the details of that evening until I reread this post.

Spoiler alert: The bottom line is that expectation sometimes leads to disappointment, and disappointment sometimes leads to ice cream — so in the end, it’s all good, right?


From November 2013 —

The fact that Sonic was already closed on the way home was the icing on the cake of disappointments.  Or, should I say – the ice cream.  I was so sure that a one dollar vanilla cone from Sonic would ease my pain.

Then, when Wendy’s didn’t have a vanilla Frosty milkshake, I was, like, “What do you mean you don’t have it? I’m looking at it on the sign!”

The polite night-shift server at Wendy’s explained. “Nobody ever ordered those, so they took it off the menu.”

“Well, they need to take it off their drive-thru menu as well,” I grumbled to myself.

So I drove across a four lane highway to get to Burger King.  Good thing it was 11:17 PM, and nobody else was on the road.

And at least they were open and had a Hershey’s Sundae Pie.

The things we do for our comfort foods.

It wasn’t the ice cream, though, that brought me back to reality.  It was riding home in the car with my dear, sweet 13-year old daughter, and thinking how precious it was that I could spend an evening with her.

Waiting in line. It was cold.
Waiting in line. It was cold.

It was remembering our laughter as we waited in line in the cold and sang Smothers Brothers songs to each other.

It was reflecting on the fact that she didn’t seem disappointed with the evening.  My own expectations had probably been too high.

I know people who try not to get excited over upcoming events.  “That way I won’t be disappointed,” they say.

Would I trade all the anticipation, all the eagerness, the thrill of imagining what was to come for a blasé attitude?

No, I think I’d rather ride the roller coaster.

And then treat myself to ice cream.