dementia

The Onset of Dementia

Recently a friend asked me, “What was the first sign of dementia with your mother?”

I knew exactly when it was. I wrote the whole story years ago in a post called, “Six Ways to Anywhere.” The gist of the story is that my mother, who never got lost, who had a Rand McNally Atlas lodged in her brain, couldn’t find her way back from the Post Office one day. That single event suddenly shed new light on so many other smaller things that she had done.

Yesterday, when I read what our President had said in response to James Mueller’s death — “Good. I’m glad he’s dead.” — brought me back to another moment in my mother’s dementia. We were at a concert in which one of my daughters was singing. It was in a large church. We settled into a pew with a good view of the stage. Another family was already seated in front of us. A few minutes later, they were joined by an obese woman who settled right in front of my mother. My mother turned to me and said in a loud voice, “THAT WOMAN IS FAT! FAT FAT FAT!” I cringed inside and wanted to leave.

It was her dementia talking. With dementia the filters for what is socially acceptable deteriorate. My mother would never have said that ten years prior, but she said what she thought regardless of propriety.

Our president continues to grow more and more crass and abhorent in what he says. I think he had a modicum of propriety in his first term, but it’s gone.

When we used to ask my mother about something, we knew that she could no longer recollect what that something was when she would say “the others.” “The others” did things, took things, were arriving for dinner, had left earlier that day — whatever she started talking about and we questioned her on because it didn’t make sense became the fault of “the others.”

When our president is asked about something that he spoke on the day before and it turns out not to be true or accurate, he defaults to, “I don’t know anything about that.” Honestly, the more I hear him say it, the more it reminds me of my mother and her dementia responses like blaming “the others.”

My father, in his dementia, would be up in the middle of the night — not typing posts on social media because he didn’t do that — but going about his day. Something isn’t right when times of day are mixed up like that.

I sat with my father multiple times for the cognitive screening. He was a smart man and passed even though I had seen in him signs of dementia.

In 2016, shortly after Trump became president, we were in the Emergency Room and the nurse asked my father the orientation/cognitive screening questions: Do you know where you are? Do you know what day of the week it is? Do you know who the president is? He answered the first two easily. For the third question he replied, “I refuse to say that awful man’s name.”

My father could ace the longer cognitive test, too. I watched him do it. He was given it multiple times because we knew something was going on. The first time he failed the clock part (draw a clock), his doctor looked up at me and our eyes met. She didn’t need to say anything. I knew.

With my mother, my father had a hard time initially acknowledging that she had dementia. He loved her. He wanted her to be whole. Finally it reached a point where, for her safety and the safety of others, something needed to be done.

Dementia is a sad, sad thing. I wouldn’t wish it on anybody.

However, spending time with people traveling that road makes one more aware and sensitive to those signs.

The people who are closest may not see it. They don’t want to see it. They truly love the person.

Forgetting or confusing names — like Greenland and Iceland — are a sign. Falling asleep in the day and being overly active at night — that is, confusing night and day — are a sign. Rambling, unable to focus or stay on task — these are signs.

“Good. I’m glad he’s dead.” — Those are not the words of a healthy human being. It’s a sign.

gratitude

TToT — January 4, 2025

Ten things for which I have been thankful over this past week:

  1. New Year’s Eve games — If you didn’t get to play games with 5 year old New Year’s Eve, you missed out. We played Magnetic, which involved magnets and strategy, Hurry Up Chicken Butt, which is like Hot Potato with a twist, and The Sneaky, Snacky Squirrel, which had game pieces shaped like acorns. Betcha I had more fun than the people who got rained on in Times Square.
  2. Morning Reading — Here’s a quote from Art and Fear, By David Bayles — “…becoming an artist consists of learning to accept yourself, which makes your work personal, and in following your voice, which makes your work distinctive.”
  3. Best comment/conversation on my blog — with Kristin (Finding Eliza) following my Unicorn Challenge story “The Big House” —
    Kristin: Did he get away with it? If so, then what?
    Me: Ah, but that is the fun of a 250 word limit. Your imagination has to take over now.
    Kristin: Grandad and grandson go on to become the robin hood jewel thieves of whatever country they’re in. Stealing from the wealthy and starting a string of food pantries and soup kitchens for the down and out. Eventually they expand and buy big houses to house the homeless. The well known ballad “They did it for us” was based on them.
  4. New word learned: whinge. Whinge definition: British : to complain fretfully : whine (Thank you, CEAyr. I will TRY to stop whinging.)
  5. Sgeoil’s ode to the Sun
  6. Last night’s crescent moon with Venus very visible next to it.
  7. A difficult decision that I made. Once something is decided, it’s so much easier, right?
  8. A long swim on Thursday. Everything feels better after a swim – my hip and my psyche being most affected in a positive way.
  9. Cats — It’s so nice to be greeted when I walk in the door.
  10. Adam — one of my friends from the gym. He sent me this video of comedian that is one of his personal friends. It made me smile.

#TToT

Uncategorized

Civil War

“Is there going to be a civil war?” one of my children asked yesterday.

“Gosh, I hope not,” I replied.

The tension in our country is alarming. I’ve never lived in a place where is an active war is being fought, and I don’t think I want to. As Rodney King once said, “Can’t we all just get along?”

To me, the question raised an interesting perspective. From a young person’s point of view, does it look like we’re headed for war?

And what would we hope to gain?

Aren’t there always peaceful solutions?

The Women’s March drew huge numbers. Friends and relatives of mine participated. I did not. Some of the signs I saw posted on social media were positive action signs, but others were angry and negative.

Last week we celebrated Martin Luther King Jr Day.  He said,

Darkness cannot drive out darkness; only light can do that.
Hate cannot drive out hate; only love can do that.

Yet, there they were — hating the haters, as if two wrongs make a right.

Hate is a double-edged sword that we wield by the blade. Everyone is hurt by it.

There has to be a better way.

Here are some positive steps we all can take (loosely based on Emanuella Grinberg’s CNN article: You Participated in the Women’s March. Now What?

  1. Volunteer for a group you care about — Absolutely get involved in constructive ways. Women’s shelters. Homeless shelters. Counseling centers. Food banks. Look around you. Be hands on. Do good.
  2. Be involved in the political process —  Learn what candidates really believe. Use your head. Their actions and their words matter. If you’re a  person of faith, pray about it. Be open-minded. Think. Don’t be a blind follower. Make your own decision. Do your research. Forget labels. Look at character.
  3. Be your own Congressional Oversight Committee — The real Congressional Oversight Committee monitors the executive branch. Hurrah!  May they do their job well!  But you can oversee your elected representatives. Pay attention to what is going on in government and don’t be afraid to let your elected officials know what you think. Know the names of the people who represent you and let them know, in positive ways, what your thoughts are.  Visit “How to Contact Your Elected Officials” to learn how to get in touch with them.

I love the fact that we can have peaceful protests in this country.

Let’s just keep it constructive, encouraging, and productive.