Tag: faith

Stewart

A New Notepad

Sally5 Comments

It became a theme. A legal pad with only a few pages written upon.

When I found the first few of these on his kitchen table, I laughed and commented to his friend, “I can’t believe he only uses a few pages on each pad.”

“Welcome to my world,” she said with a smile.

As we dug deeper and deeper into the apartment — my brothers, my sister, my father all helping — it became abundantly clear that we had had a minimal understanding of Stewart’s struggles. Layered in with the notepads was a paper trail that told such a sad, sad story.

I daresay that each of us wept, though not collectively. Individually. Privately. Alone. As my family is wont to do. Hearts breaking, not just with the loss of a family member, but with the pain that we uncovered.

While over the years I was busy looking down my nose and saying things like, “I don’t understand why Stewart doesn’t just (fill in the blank),” Stewart was hitting yet another pothole on the bumpy road of his life. And I had no clue. I truly didn’t understand.

“I found a notepad if anyone needs one,” one of my brothers would call out occasionally.

DSC00693
the tip of the iceberg

We would laugh. There was no dearth of notebooks. He had legal pads – yellow and white, composition books, loose leaf paper and three ring binders, ring bound notebooks, blank journals, and paper, just plain white paper.

As I put together a timeline for Stewart’s life — the hidden part that I didn’t know — I began to see a theme. An attempt to put old things behind and start new, followed by a problem, followed by yet another attempt to start new.

This plethora of notepads was a metaphor for his life. A clean notebook. A fresh start. Followed by something I couldn’t always see that made him want to start again.

At the beginning of the weekend, I had driven to the Pittsburgh airport to pick up my sister. On my way, I had passed a man standing along a busy road where there was stop-and-go traffic. He held a battered cardboard sign that read something like, “HOMELESS. VETERAN. PLEASE HELP.” I had watched through my rearview mirror as someone handed him money out the window of their car. My cold hard heart felt nothing for him.

At the end of the weekend, after driving my sister back to the airport, I saw him again. I had no loose change to give him, but I wanted to ask him, “Do you have a sister? Does she live in a little town in a two-story house with her family? Does she know about your gritty exhaust-filled life here by the road?”

Stewart had never reached that point of standing by the road. But I never knew all the struggles he did have.

I wanted to roll down my window and hand that homeless guy a notepad.

Alzheimer's · Faith

Knowing My Name

Sally7 Comments
When Maggie can’t find her fish, she carries a different toy.

“You’re the lady with the dog,” a woman said to me at church the other day.

“The dog with the fish?”  I responded, half-questioning, half completing her sentence.

“That’s right,” she said excitedly.

Our dog is famous around Greene.  She carries a toy, usually a fish, with her on walks.  At Christmas, she carries a Santa.

And now I’m known as the lady with the dog with the fish.  All my life I’ve been identified by others — Dr. Pollock’s daughter, Bud’s wife, Philip’s (or Owen’s or Sam’s or Helen’s or Jacob’s or Karl’s or Mary’s or Laurel’s) mother.  It’s really okay — I kind of like being in the background.

The outdoor high ropes course at the Clark Sports Center in Cooperstown.

Yesterday, Mary did an outdoor high ropes course.  She said, “There were two rules.  The first was that you couldn’t call anyone ‘Hey, you’ so we had to learn everyone’s names.  If we couldn’t remember their name, we were supposed to ask them to tell us again because it’s disrespectful not to try to learn someone’s name.”

“What was the second rule?” I asked.

“I don’t remember,” she said.

When we visited my mother at the Manor, she was still in bed.  It was 11 AM.

“She’s being a stinker,” the nurse told us.

“Hi, Mom,” I said as I entered her room.

She turned and looked at me.  “Oh, hi,” she said.

“Are you going to get up today?” I asked.

“Not yet,” she replied.

“Do you know who I am?” I asked.

“Yes, I know who you are.”  She smiled at me.

“Okay, then,”  I challenged, “who am I?”

“You’re Sally.”

What a sweet little pleasure to realize that she still knows my name!

She knows my name.  I’m not the lady with the dog, or the one with a bunch of kids.  She knows my name.

Alzheimer's · Faith

My Inner Porcupine

Sally24 Comments

One of the most precious lessons I have learned (and am still learning) from my mother’s Alzheimer’s is not to take things personally.  I have such a tendency to do that!  When people say or do little things, and sometimes big things, that are mean or hurtful, I dwell on them.  With my mother, when she scolds or is angry, I just tell myself that it’s her illness talking.

The other day, I found myself doing it again — focusing on someone’s hurtful words and actions.  The thing is, other people may not have an Alzheimer’s problem, but they have a human problem.  We are all so painfully human.  Just as I excuse  my mother with her Alzheimer’s, I need to excuse others because they are just people.

Grace, grace, grace — so abundantly given to me, I should be able to share it.

There’s a porcupine within me
That bristles up at certain things
And I cannot quite control it
Or the turmoil that it brings.

When frightened, angry, hurt,
The little spears come into play,
And they prickle and they stab –
They make people move away.

Sometimes life is lonely,
With this porcupine inside.
Sometimes I don’t like me,
And I want to run and hide.

Why can’t I have a bunny
Hiding inside me?
With long soft ears and fluffy tail,
Huggable as can be.

Why can’t I have a puppy
Hiding there instead?
With wiggles, fun and energy –
A thing no one would dread.

But no, I have a porcupine
That I must learn to keep,
And the lessons that he teaches me
Are hard and sometimes deep.

But the lessons that I learn,
Painful though they be,
Help me to grow in grace, grace, grace –
And become a better me.